The three articles were most relevant to the topic and explored the implications that family involvement has during end-of-life in long term care from the family perspective. The three recurrent themes that family involvement has during EOL in long term care are: improved caregiver advocacy and improved quality of end-of-life care for patients achieved through improved communication.
Caregiver Advocacy Unfortunately, 25-75% of patients will lose their capacity to make medical decisions at the EOL (Sudore et al., 2014). Therefore, family are involved to support the patient on their EOL journey by assisting them with medical decision making that is reflective of their wishes (Sudore, 2014). Therefore, as family involvement increases, patient advocacy improves (Sudore, 2014). Family involvement was unitedly defined as a family or friend caregiver who was most involved in the patient’s care. Caregiving tasks were direct, such as personal care and meals, or indirect, such as management and monitoring, and was provided on weekly to monthly basis (Williams et al., 2012). In the last month of life, 63% to 94.2% of decedents had family involvement with 87.5% of families being satisfied with the overall care they received (Sudore et al., 2014; Williams et al., 2012; Thompson et al., 2012). According to Williams et al. (2012), the indirect task of monitoring, such as advocating for medical care, diet and medication, had the highest involvement rate of
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