The Immortal Life Of Henrietta Lacks By Rebecca Skloot

“The Immortal Life of Henrietta Lacks” is the story of Hela cells and the women and family behind them. HeLa cells are the cells that have helped scientists all around the world discover cures and vaccines that have saved thousands of lives. But before they did all those things, they were inside a woman, named Henrietta Lacks, and were taken from her without her knowledge. Her family would not know about her cells until years after her death and millions of dollars in revenue gained from the HeLa cells. At the time doctors did what was considered common practice but did they cross a line? Or were the amazing scientific achievements enough to excuse the violation of personal privacy? Despite good intentions doctors should never have taken Henrietta’s cells without her consent, and furthermore her family deserves compensation for the work those cells have helped accomplish, and the sometimes horrible circumstances they have had to deal with because of the cells.

Another example of this construct not met in the case of Henrietta Lacks was the lack of compassionate care. Patient experiences can be improved if healthcare professionals act with compassion and dedication to serve patients and promote their well-being. Henrietta suffered so much pain and complained about the discomfort as complicated by the disease process, but her complaints were ignored; instead, her doctors wrote just the opposite of what she complained about stating, “the patient states that she feels fairly well” and continued, “no evidence of recurrence” (Skloot, 2010, p.63). This is an example of deception, lack of compassion and outright contradiction to professionalism and commitment to the primacy of the patient.

The scientific community is culpable of viewing Henrietta Lacks as an abstraction rather than a human being in that they disregarded her right to privacy in extracting her cells

The main ethical issues in this case is that researches at Johns Hopkins Hospital used Henrietta’s cell in multiple researches and send her cells to other researchers around the world without her family’s consent. Moreover, the Lackes themselves were used in medical research without informed consent, and Henrietta’s medical records were release to journalists without her family knowing.

The social contract of nursing is important because it reflects the nursing's code of ethics, which is to provide care to all who are in need, regardless of their cultural, social, or economic standing. The social contract exists because we rely on a guideline to continue to provide ethical care that is within our scope of practice. Unfortunately, in Rebecca Skloot’s (2010) book, “The Immortal Life of Henrietta Lacks” there were many ethical violations throughout the whole process about the Henrietta Lacks’ cells (HeLa). The author reveals the story about the life of Henrietta Lacks, an African American woman who was diagnosed with a fast-growing cervical cancer at a young age. The cells retrieved from her cervical tumor became the first immortal cell that could survive in the lab and replicate continuously without dying. Without the consent of Henrietta Lacks and her family, these cells later became key components to the development of many groundbreaking inventions such as the polio vaccine and in vitro fertilization. Therefore, the purpose of this paper is to examine the social covenant of nursing in relation to the ethical issues behind the use of the HeLa cells without the patient’s and her family’s consent.

Henrietta Lacks died in 1951 of cervical cancer, leaving behind a husband, five children and some cells taken from her without her permission. These cells continue to revolutionize the scientific field today and have played an integral role in some of the most important advances in medicine: cloning, chemotherapy, gene mapping, the polio vaccine and in vitro fertilization. The Immortal Life of Henrietta Lacks answers a lot of questions regarding the Lacks family, but also poses a number of questions regarding ethics, consent and how far society is willing to go to make medical advances.

The scientific community’s careless mistreatment of the Lacks family began with dehumanizing Henrietta’s cells in the very first lab. Generalizing people can especially be easy when one is working with their cells in a lab. The many scientists working on Henrietta’s cells must have found it easy to separate the cells from the person and reduce them to tools to aid them in the task at hand. This view may be harmless when it comes to the individual scientist, and the individual cell, but this view extended to the entire Lacks family and caused them much harm. “Meanwhile, Victor McKusick and Susan Hsu had just published the results of their research in

The book “The Immortal Life of Henrietta Lacks” brings up a problem in society that was a serious obstacle in the field of medicine in the 1950’s. This problem is that the individual rights of a human versus the general need of humanity. The general need of humanity is much more important than the rights of a human.

With the numerous legal, ethical and moral issues that were highlighted in Henrietta Lacks case, two major ones to note: 1) the Lacks never specifically consented to providing samples of Henrietta’s cervical tissue for research, and 2) Johns Hopkins University releasing Henrietta’s name and medical records to third parties without her or her family’s

Henrietta Lacks was a poor, black woman who died of cervical cancer in the fifties. Her cells were taken from her during surgery, without her knowledge. However, back then there were no laws about informed consent and the mindset was entirely different. Researchers knew little about cells and how they function. Her immortal cells allowed researchers to have an ample amount of resources to be able to study cells and later on develop vaccines and treatments for many diseases. Even though her cells were cancerous, they still shared many basic characteristics of a normal cell, which allowed researchers to learn a lot about a cell’s basic function. Her story explains how medical research has developed and how health care has progressed over the past sixty years.

For this week’s assignment I am to discuss ethical principles, specifically the ethical principles that were violated during the research in regards to Henrietta Lacks. Henrietta Lacks was a wife and a mother of five. She was a black tobacco farmer and was a native of rural southern Virginia but a resident of Turner Station in Dundalk, MD. Henrietta had mentioned to family that she had felt a “knot” inside her while pregnant with her fifth child but her family just assumed that it was due to the pregnancy. After giving birth, Henrietta started bleeding abnormally and profusely. Her local doctor tested her for syphilis, which

Bobette met a research scientist who said he had been working with cells from a woman named Henrietta Lacks, Bobette’s reaction can be seen here, “But Bobette kept shaking her head saying, ‘how come nobody told her family part of her was still alive?’ ‘I wish I knew’ he said. Like most researchers, he’d never thought about whether the woman behind the HeLa cells had given them voluntarily’” (Skloot 180). The research scientist she talked to, along with countless other scientists, had never thought about the woman behind the cells and this is part of the reason nobody ever told the family about the cells. Bobette finally found out about the HeLa cells after twenty-five years of no information and a revolution in medicine caused by her late mother-in-law. But it did not get better for the Lacks family after discovering Henrietta’s cell line. Every time one of the Lackses asked questions about Henrietta’s cells, the professionals would never take time to answer their questions, to help them understand what had happened at Johns Hopkins with the cells, or to explain to the Lackses what Henrietta’s cells accomplished. The doctors did not care about the patients and their families, but more about what was in it for them. The doctors did not look at the situation ethically by not telling the family about the cells. They also violated privacy values, which are now rights. They

The treatment of African Americans in The Immortal Life of Henrietta Lacks demonstrates the lack of ethics in the United States health care system during the 1950s and 1960s. Under the impression that medical doctors at Johns Hopkins Hospital were solely injecting radium treatment for cervical cancer, Henrietta Lacks laid on the surgical bed. During this procedure Dr. Lawrence Wharton Jr. shaved two pieces of tissue from her vagina, one from a healthy cervical tissue and one from the cancerous tumor, without Henrietta’s prior knowledge. After recovering from her surgery Henrietta exited the door marked, “Blacks Only,” the door that signified the separation between White and African-American patients. Had Henrietta been White, would the

Henrietta Lacks case was different than Mississippi and Tuskegee in some ways. In Henrietta’s case the doctors took her cells from her cervix but like in the Mississippi and Tuskegee cases they took them without Henrietta’s permission and launched a multimillion-dollar medical industry after she died. The purpose of taking Henrietta’s cells was to just run a couple tests until they died but they ended up living and growing. Instead of telling Henrietta and her family what they have been doing the doctors kept the discovery to themselves. When the discovery of the immortal cells because known every doctor got their hands on them and started running experiments on them, sending the cells to space, running test on the cells to find a cure to aids and cervical cancer etc…

The Immortal Life of Henrietta Lacks focuses on many issues that Henrietta and her family have faced over the years resulting from the discovery of HeLa cells. One such issue that was recurrently present was the ethical issue of informed consent, or the lack of it, in the Lacks’ case. In the beginning when Henrietta was first being treated with radium to kill her cancerous tumor, her primary doctor, Dr. TeLinde, took a sample of the tissue and sent it to Dr. Gey, head of tissue