Criterion 3: Clinical trial individualized patient support Pro Rare disease participants feel support as well as in control of their participation. Assess participant’s goals, expectations and ideas for how to help them as a whole person throughout the clinical trial. Support keeps an individual focused as well as self-rejuvenated throughout the mind, body, and soul. An individual that goes through cancer gets comprehensive support engagement opportunities as should an individual with a rare disease or condition. Con The first weakness would be a lack of knowledge to provide individualized patient support for those with rare disease or condition. Rare disease patients denied support that is available to them. Support is an expense and may
| WEAKENSSES: * financial support and available funding * reputation of services as such mistreating patients * lack of access to technology in these areas * management or staff availability * lower income areas * undifferentiated service lines
| | |friends about the changes it may have on their life. Getting an early diagnosis also enables an |
Cancer has one of the biggest effects on the patients mental health but also the patients loved ones and friends. It is one of the hardest things to get a grip on when the doctor tells someone that they have cancer and a fifty-fifty chance of making it. "The disease can bring many changes-in what people do and how they look, in how they feel and what they value" (Dakota 4). It makes people look at the world and their lives in a different way, valuing now what they took for granted and seeing the bigger picture in every scenario. It is something that no one can actually brace, even after the doctor tells them. Through it all though, the person must remain strong and optimistic because the cancer can affect the person's moods and in return affect the outcome of the person and the chances of their making it
The practice that assist a therapist in determining a client diagnosis and the proper treatment plan that would resolve the issue surrounding the clinet’s diagnosis is Case Conceptualization and Treatment Planning. The clinet’s treatment plan must be appropriate and relational and this will alow any type of medication and adaptions to be adjusted if needed so that modifications and adaptations can be adjusted as needed (Altman, Briggs, Frankel, Gensler, and Pantone, 2002). The ultimate goal of case conceptualization and treatment planning is to discover complete findings in relation to the client. One approach is Existential Therapy. The human
Lack of financial resources. Although the lack of financial resources is a barrier to health care access for many Americans, the impact on access appears to be greater for minority populations.
Some challenges facing the agency would be only being able to pay for one chronic
* Weakness: The limited size of the sample. A larger sample size would add credibility to the study.
Thus, if a patient is not managed well then there can serious consequences that one
Lack of knowledge to decide which healthcare is the best option for each individual and his or her view of what is urgent.
CM conducted an Annual CFT meeting for Robert “Bobby” (youth) at the family’s home in Jersey City, NJ. In attendance were Jasmine Alexander (CM), Eileen Deegan (Caregiver), Robert (youth) and Billy Mercedes (IIH). Aminata (ISS) participated via phone. Robert has numerous natural supports to assist with treatment.
Success largely depends on additional forms of treatment provided to the patient including group and individual therapies, but outcomes can be measured and early results are promising, especially with the young adult population.
D. Getting people with chronic diseases such as cancer to continue to live their life normally is important for their healing. Paul Kalanithi writes in his book, When Breath Becomes Air, about how he was able to overcome the pains of his cancer during treatment to go on and accomplish more that he thought he could once he found out he had cancer. This story is an example of how patients can be taught to manage and live with their disease to live full lives with the time they have
As said before, there are a lot of uncertainties crossing patients’ minds when they are told about their diagnosis, uncertainties that they usually keep for themselves in order not to worry their families and friends. A support group, in this regard, does not only help people interact and share, but also let people know that they are not alone and that there are others who are sharing the same difficulties or some may have worse ones. it is not said here that knowing that others suffer make patients feel better, the fact is that patients can find hope in their lives if they see someone who has cope with the disease in a proper way and tries to be positive. Therefore, in this places patients bond with other patients and feel free to express their feelings, shed tears, share concerns and other things that they do not feel safe doing near to their loved ones. Advices are also in order in support groups. How to deal with fear, how to carry on with their lives, how to cope with side effects of treatments, how to share with the family, how to tell children about the disease; these are all questions that Mesothelioma patients usually have but they do not know who to ask and in these support groups there may be answers for all those
Including patients and families in the initial team discussion would provide a better perspective for the patient as to what topics are discussed and what efforts go into the multidisciplinary meetings concerning their specific disease. It would allow them an opportunity so see just how much detail is involved with these collaborations, and expose them to the science behind all the discipline-based evidence that is
Bibliographic information: Richard C. Cardoso & Peter J. Gerngross & Theresa M. Hofstede & Donna M. Weber & Mark S. Chambers. Support Care Cancer (2014) 22:259–267 DOI 10.1007/s00520-013-1960-y.