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Biologics Case Summary

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Bio-Naïve Patients had a lot more to think about – new worries about joint damage, frustration with being left in the dark about Biologics, elation in knowing sustained pain relief is possible and that support systems exist I have been concerned that I may have more joint damage than I previously realized – RA-D I want materials, websites and other visual resources to know levels of deterioration going on inside my body – RA-D It made me want to consider joining a support group of some kind because I really liked being around others who could relate to me and that I didn't have to mask my real self from them when it came to my RA – RA-D I have been thinking how some people get well-informed information from their doctors and some don't get …show more content…

Why have you recommended methotrexate, naproxen, and cortisone & toradol shots as opposed to other options (i.e., Biologics, etc.)? I want to speak to him about Biologics and if he believes in them and uses them with others. How does he make the decision to go that route with some individuals versus others? What support groups are available for people living with RA? Lastly, I'm going to be 100% honest - forget this feeling like a burden to my doctor - I have to step-up and advocate for myself...so next time I talk about how badly I hurt, I'm not so quick to accept the first thing he offers…I actually question his rationale behind that option. And if I am not satisfied with how he responds to those questions....I'll be looking for a new doctor. Yes, I believed that Biologics would be unaffordable to me. However I made some calls to The Psoriatic Foundation and had a rather encouraging discussion which them, however when I spoke directly to the Enbrel people I found they were far less encouraging. I tried to move my follow-up doctors appointment up, only to discover that they are closed on …show more content…

I don't know anyone else who has this and to have people who “get it” without having to have me explain it was huge. Looking at and hearing how each of them are dealing with it also gave me ideas and let me know that it is OK to not always try to be as "normal" as my other friends/family. If I need to spread out my tasks or take longer to do something, that is OK. Listening to the others made me realize that it is part of the disease - not me being lazy or cutting corners. The guilt is less – PsA-B When we met the other group, it felt like looking at myself several years ago. I could see the fear and sadness, which I totally understand. There was a distinct juxtaposition between how our group views the disease and how the other group does. They will get to our place in their own time – PsA-B I also thought it was great to be able to assist the other group in helping educate them around the decision of whether to go on Biologic treatment. I though that experience was invaluable in itself and was quite a high point of the session – RA-B The other thing that I am replaying in my mind is that after the group someone from the Bio-Naïve group pulled me aside and had so many questions for me about my RA treatment and my experience. This led me to believe that maybe Non-Biologic folks are interested in (need) a safe, supportive environment to open up and get their questions and concerns

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