Bio-Naïve Patients had a lot more to think about – new worries about joint damage, frustration with being left in the dark about Biologics, elation in knowing sustained pain relief is possible and that support systems exist I have been concerned that I may have more joint damage than I previously realized – RA-D I want materials, websites and other visual resources to know levels of deterioration going on inside my body – RA-D It made me want to consider joining a support group of some kind because I really liked being around others who could relate to me and that I didn't have to mask my real self from them when it came to my RA – RA-D I have been thinking how some people get well-informed information from their doctors and some don't get …show more content…
Why have you recommended methotrexate, naproxen, and cortisone & toradol shots as opposed to other options (i.e., Biologics, etc.)? I want to speak to him about Biologics and if he believes in them and uses them with others. How does he make the decision to go that route with some individuals versus others? What support groups are available for people living with RA? Lastly, I'm going to be 100% honest - forget this feeling like a burden to my doctor - I have to step-up and advocate for myself...so next time I talk about how badly I hurt, I'm not so quick to accept the first thing he offers…I actually question his rationale behind that option. And if I am not satisfied with how he responds to those questions....I'll be looking for a new doctor. Yes, I believed that Biologics would be unaffordable to me. However I made some calls to The Psoriatic Foundation and had a rather encouraging discussion which them, however when I spoke directly to the Enbrel people I found they were far less encouraging. I tried to move my follow-up doctors appointment up, only to discover that they are closed on …show more content…
I don't know anyone else who has this and to have people who “get it” without having to have me explain it was huge. Looking at and hearing how each of them are dealing with it also gave me ideas and let me know that it is OK to not always try to be as "normal" as my other friends/family. If I need to spread out my tasks or take longer to do something, that is OK. Listening to the others made me realize that it is part of the disease - not me being lazy or cutting corners. The guilt is less – PsA-B When we met the other group, it felt like looking at myself several years ago. I could see the fear and sadness, which I totally understand. There was a distinct juxtaposition between how our group views the disease and how the other group does. They will get to our place in their own time – PsA-B I also thought it was great to be able to assist the other group in helping educate them around the decision of whether to go on Biologic treatment. I though that experience was invaluable in itself and was quite a high point of the session – RA-B The other thing that I am replaying in my mind is that after the group someone from the Bio-Naïve group pulled me aside and had so many questions for me about my RA treatment and my experience. This led me to believe that maybe Non-Biologic folks are interested in (need) a safe, supportive environment to open up and get their questions and concerns
| | |they fully understand their diagnosis before it progresses, this enables them to talk to family and|
The duties I complete as a medical assistant give me a unique opportunity to learn and be immersed in medicine as a member of practice’s health care team. I take every opportunity I get to shadow Dr. Bell and take the time to actively learn from him. He continuously goes out of his way to utilize teachable moments to help me learn more about medicine and the factors surrounding it, such as the complex relationship between insurance providers and healthcare professionals. He is always receptive of any questions I may have about exams, procedures, and treatments and routinely asks my
Another thing I noticed is that there is a large gap in research on stage four, or ‘terminal’ patients. I am unsure why this blank space exists, but I firmly believe that the voice of those affected by stage four cancers should be heard. There are many misconceptions that the world has about stage four cancer, and I think that conducting research on this subgroup would help to educate the population on what this stage of the disease truly
Because patients found Source of Strength to be the most relatable and emotional, this idea remained sticky and tugged on the heart strings even after the groups
He believes that Carlos is drug seeking and is looking for a quick fix for his problem. A colleague suggests that the patient may truly be in pain due to a case study she reviewed involving the Latino culture. The case study suggested that Latino men show increased pain after surgery compared to men of other ethnicities (U.S. Department of Health and Human Services, 2016). The surgeon asks to review the case study and then reschedules another follow-up appointment for Carlos (U.S. Department of Health and Human Services, 2016). The overarching issue could have easily been resolved using three interventions. The first intervention would be for the physician to conduct a cultural self-assessment. He should first remove his prejudices and biases from his practice (Andrews & Boyle, 2016). The physician should then complete a physical examination to assess the type of pain Carlos is experiencing (Andrews & Boyle, 2016). Once the physical exam is complete, the physician and Carlos should set mutual goals, commence care planning, and implementation of care (Andrews & Boyle, 2016). The physician may also suggest other ways to manage pain such as ice packs, relaxation techniques, or even
I would’ve never predicted how amazing the effects of my visit to the nursing home would be. After greeting the elderly and holding conversations with each and every one of them, I was amazed by how appreciative they were for my visit. Perhaps they felt lonely or abandoned before, but now tears of joy glistened in their eyes. Maybe all people need is to know they are cared for, even by a simple stranger. Moreover, I was stunned by the optimism they had for their future, even at old age. They were so youthful in spirit, regardless of their frail bodies. They were selfless enough to tell me to take care of myself, even if they were the ones in wheelchairs. It taught me that happiness can exist, even at old age, regardless of discouraging circumstances or diminishing
We may not be able to help everyone who has medical problems, but we can try to help as many as we can. We can at least help a few people, and it can make a huge difference in those people’s lives. I liked the story that our guest speaker, Drew Worsham
Rare disease participants feel support as well as in control of their participation. Assess participant’s goals, expectations and ideas for how to help them as a whole person throughout the clinical trial. Support keeps an individual focused as well as self-rejuvenated throughout the mind, body, and soul. An individual that goes through cancer gets comprehensive support engagement opportunities as should an individual with a rare disease or condition.
During my medical education, I had the opportunity to do two separate electives in PM&R. My first elective was at Kaiser Permanente Hospital working under the supervision of Dr. Michael Jaffe; a well-known PM&R physician. While working closely with Dr. Jaffe on many different and interesting cases, I was further drawn to the field of PM&R, especially due to the complex and varied nature of human musculoskeletal diseases, and PM&R’s wide spectrum of musculoskeletal disease pathologies, which involve many patient populations spanning from the younger to the older generations. This experience was both intellectually challenging and personally fulfilling, especially being able to establish extended relationships with patients, work collaboratively with other medical providers such as physical therapists and occupational therapists, to deliver skillful and thoughtful care to a diverse patient population, to develop new diagnostic and therapeutic modalities, and to pursue the understanding of the underlying pathophysiological events of musculoskeletal diseases so as to help patients transition back to accomplishing their activities of daily living. With this comprehensive perspective in mind, the PM&R specialty has become a very fascinating, challenging and fulfilling career path. For these reasons, I decided to further my goal of pursuing a specialization in PM&R, and continued
Our group represented colon cancer and I was proud to support this cause because my mom was diagnosed with colon cancer and she not only fought it but she is a survivor. So this event was personal to me and very rewarding. I enjoy passing my knowledge and it was gratifying to be able to do so during this event. Moreover, this event allowed me to be in the community, offering much needed education on heart disease and offering blood pressure screenings and offering
A study from the Pain Journal found that chronic musculoskeletal pain was more common than chronic neuropathic pain, however, neuropathic pain was found to be more severe and debilitating. Studies show that approximately 65%-85% of individuals with spinal cord injuries suffer from chronic pain. Many patients with spinal cord injuries will develop “severe/excruciating” neuropathic pain below the level of their injury. (Siddall et all, 2003). United States SCI veterans are susceptible to chronic neuropathic pain due to a wide range of contributing factors that include trauma, post-traumatic stress disorder, surgery, anesthesia, prolonged immobilization, depression and anxiety, and mental illness – or a combination of any aforementioned. Many of our SCI patients are on heavy pain medications that limit them from activities of daily living and affect their ability to participate in scheduled therapies in the hospital. For example, when our patients are on opioid medications, they are unable to drive which directly affects their ability to function normally in society. Additionally, these medications can lead to patients unwilling to leave the house or hospital because it will interfere with their regular drug administration times. In both of these instances, the patient’s day becomes dependent upon drug administration.
Your different perspectives of the doctor and the patient help me effectively understand the difficulty and sorrow from both sides. This understanding leads to increased compassion which in turn makes me a better human being. I look at these people with a new, refined light. I feel sad for their condition and hopeful that one day there might be a cure which will save millions of innocent lives. Your recall your disease with painful uncertainty. It reminds me that even in this age of human advancement, there are things that humanity has yet to discover and
On Thursday the 9th, I worked with a patient who is a 74 years old male, with general weakness. His admitting diagnosis was caused by the metastasis of prostate cancer to the bone. Talking to the patient was an amazing experience for me because we liked the same thing such as the NBA. He told me that he was a lawyer and that all of his children are grown up and successful. He does a wife, who I did not see during my rotation. But, it was easy to talk to communicate with him. I have always had social anxiety growing up. Talking to people had always been my weakness because I was always worried about how people would perceive me when I talked. However, now that I have grown up, I learned to look past my social anxiety. I learned that from shutting my brain off that caused me overthink, facilitated me to
- However, because Courtney et al did not apply joint mobilization to those whose CPM is not impaired, it is unclear if joint mobilization is or is not effective in changing pain in those with normal functioning CPM
The air was so fresh and the sky was perfect blue, not a single cloud in the sky over the farm. As soon as we arrived the director of the event greeted me like a friend and not just a volunteer. It was the most heartfelt welcome I have ever received from a stranger. She informed me that I would not only be registered as a volunteer, but also as a patient. Just hearing that information filled my heart with joy! It sent me over the moon knowing they honored my disease and all that I went through on the journey my illness sent me through. They told me I didn’t fight that hard to beat my disease to not have recognition and praise for being a fighter. After walking around the lot and seeing all the events, it was as if I were watching a video of myself going there as a kid and participating at every booth. There was the stage; as a child I got