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Syromyelia Case Study

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I am a 54 year old woman with Syringomyelia as a secondary condition to Chiari Type One Malformation. I would be interested in being involved in any research that is being undertaken currently. I live in Colchester, England and don’t know anyone else with either Chiari or Syringomyelia. I would be grateful for any contact from Rare Share.

For Clinical trial Information refer to Link below: https://www.clinicaltrials.gov/ct2/results?cond=Syringomyelia&term=&cntry=&state=&city=&dist= For advanced search Fill out page linked below: https://www.clinicaltrials.gov/ct2/search/advanced?cond=&term=&cntry=&state=&city=&dist= Possible Surgical Treatment Plans
Posterior Fossa Decompression-
Surgeon will surgically create more space for the cerebellum, …show more content…

In doing so, it creates more space around the spinal cord. The cervical portion of the spine is made up of your uppermost vertebrae in the neck. This procedure is known to be combined with the posterior fossa decompression surgery. Both treatments work to maximize the restoration of cerebrospinal fluid flow.

3. Spinal Fusion
In this procedure, the surgeon will join the skull and the uppermost vertebra of the neck so they come together and heal as a single bone, increasing stability and support. This procedure protects the spinal cord from further damage.
4. CSF Diversion
CSF (cerebrospinal fluid) is the fluid that bathes the brain and spinal cord. It is formed in the ventricles of the brain and follows a course down the spinal column and back up to the brain, where it is reabsorbed into the bloodstream.
CSF diversion is a way to deal with the buildup of cerebrospinal fluid. This surgery is typically used in secondary cases of Chiari where hydrocephalus (abnormally increased pressure in the skull) forces the cerebellum down to create the Chiari. In this procedure, the cerebrospinal fluid is treated by shunting the CSF elsewhere in the body (typically the abdomen), where it can be reabsorbed into the bloodstream.

Other individuals with Chiari or Syringomyelia Via “Rare Share” Below???: POSSIBLE SAMPLE NAME?CONTACT INFO? (If

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