MHACB508Reflection 3

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MHACB/508 Reflection 3 Taylor Abbott
Contemporary Ethics The analogy that Mr Lengauer makes really made me think. Lack’s cells, she had no idea were being used for other scientific reasons, however if she did know would she had allowed it? Would she have even wanted money from it? Or just the satisfaction of knowing she was saving millions of lives? So I think about donating my body to science, if they find something that could help cure others, is it right that my children benefit monetarily from that? However, then I think what if I knew I had a cell that could possibly help save lives, would I be selfish and never let it go any further than being apart of me? I feel like that analogy carried many different answers and feelings. Interactions like the one that occurred when a doctor was treating Henrietta with Radium for the first time while also harvesting cells from her tumor are prohibited under the law because the doctor did not obtain the patient’s consent. Gey’s growth of Henrietta’s without her permission would be illegal today as well (Skloot, 2014). When Mukusick directed Susan Hsu to get blood from Henrietta’s family, she didn’t’ make sure Day and his children where aware why the blood was even being obtained, as well as not getting any informed consent. Mukusick’s goal was to find out what HLA markers Henrietta had. Since that incident the NIG principles for informed consent and review board approval have been enshrined into law. No scientist today would publish the results of that research because revealing a person’s name and genetic information would violate HIPPA. Part 2 – Contemporary Perspectives
The first point that I think is interesting is point 2. I WAS OF THREE MINDS. Skloot started this story to tell about the immortalization of Henrietta’s cells. There was a lot of information that was not scientific or necessary to tell the story of the cells. There was never anything mentioned about testing for mental or emotional health which would have given some cause for some of the information shared but the HeLa cells story did not require information like that. The information about her sexually transmitted disease may have helped with the fact that the cancer she had was cervical cancer. The Privacy Act that exists today would have prevented any of this information from being shared without consent. The second point that I think is interesting is point 4. AN INDECIPHERABLE CAUSE. There were two central transgressions with the research that was done with Mrs. Lacks cells. One was the failure to get informed consent from Lacks to use those cells in the laboratory for another research. The other was a failure to de-identify the cell line. The violations were of autonomy and privacy. The question remains that if name that was used to identify Lacks cells was changed to something other than her name would privacy have been breached? There are many ways to answer a lot of the questions this story brings up.
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References Skloot, R. (2014). The Woman In Immortal Life. h ttp://www.pbs.org/wgbh/secretlife/blogposts/the-immortal-life-of-henrietta-lacks- b ook-excerpt-part3